Open enrollment for the Affordable Care Act (ACA) insurance plans has begun! Now is the time to explore the many options and specialized plans available to meet your family’s unique needs. Let’s look at the open enrollment period, the history of ACA plans, specialized options for children with Autism Spectrum Disorder (ASD), applying, choosing the right plan, the importance of preventive care, and challenges.  

What is Open Enrollment and When Does it Happen?

Open enrollment is the yearly period when individuals and families can sign up for health insurance through the ACA marketplace. For 2025 plans, open enrollment began November 1, 2024 and ends January 15, 2025. It’s important to note, outside of this period, you can only enroll in or change your plan if you experience a qualifying life event, like moving to a new state, losing other health coverage, or experiencing major household changes (e.g., marriage, divorce, or the birth of a baby).

A Brief History

The Affordable Care Act, implemented in 2010, has made healthcare more accessible and affordable for all Americans. It has been a momentous change for many families, particularly those with disabilities. Before the ACA, insurance companies could deny coverage because of pre-existing conditions or charge exorbitant premiums that were unaffordable for many. The ACA has helped remove those barriers. Today, insurers cannot deny coverage or charge more due to a disability. Additionally, ACA plans are required to cover essential health benefits, including rehabilitative services and therapies that are often critical for individuals with disabilities.

Specialized Plans for Children with Autism Spectrum Disorder (ASD)

For families with children diagnosed with Autism Spectrum Disorder, finding the right plan is especially crucial. Many ACA-compliant plans offer coverage for essential services such as: 

  • Applied Behavior Analysis (ABA) Therapy  

This evidence-based therapy helps children with ASD develop important social and behavioral skills. Coverage for ABA therapy is typically included under behavioral health or rehabilitative services. 

  • Speech and Occupational Therapy  

These therapies are often critical for children with ASD to enhance communication, motor skills, and daily functioning. 

  • Mental Health Services  

Plans include mental health counseling and support, which can be invaluable for children and families managing the emotional challenges associated with ASD. 

How to Apply

Applying for health insurance through the ACA marketplace is straightforward: 

  1. Create an AccountVisit HealthCare.gov and create a marketplace account. If your state runs its own marketplace, you will be directed there. 
  2. Complete Your ApplicationFill out your household and income information. This step will determine your eligibility for subsidies or Medicaid, which can make coverage more affordable. Families with disabilities often qualify for additional assistance. 
  3. Compare PlansReview the available plans in your state. Look closely at the coverage for therapies, medications, and specialists that your family requires. 
  4. EnrollOnce you have chosen the right plan for your family, submit your application, and pay your first premium to secure coverage. 
  5. Get Help if NeededIf the process feels overwhelming, assistance is readily available. Navigators and enrollment counselors can provide free help to ensure you find the right coverage. You can locate one near you through the ACA website.

Choosing the Right ACA Plan

When selecting an ACA insurance plan for your family, especially if you have unique medical requirements, careful consideration is key. Here are some additional tips to guide you: 

  • Understand Your Family’s Medical Needs  

Make a list of the doctors, specialists, therapies, and medications your family uses regularly. Check if these are included in the plan’s provider network or drug formulary. This ensures continuity of care and avoids unexpected out-of-pocket expenses. 

  • Evaluate Plan Types  

ACA plans are categorized into metal tiers—Bronze, Silver, Gold, and Platinum—offering varying premiums and out-of-pocket costs. For families with ongoing medical needs, a Silver or Gold plan might provide better value due to lower copays and deductibles compared to a Bronze plan. 

  • Check for State-Specific Benefits  

Some states mandate additional benefits beyond what is required federally. Research your state-specific marketplace to see if extra supports are provided for families with disabilities, including enhanced coverage for therapies or assistive devices. 

  • Account for Emergencies  

Evaluate the plan’s emergency care coverage. This is particularly important for families who may need urgent access to specialized medical facilities or services. 

  • Monitor Out-of-Pocket Limits  

ACA plans have maximum out-of-pocket limits, which can set a safety net for covered expenses. Ensure the limit is realistic for your family’s financial situation, as families with disabilities often face higher-than-average medical costs.

Resources

Accessing the right resources can make a significant difference for families seeking appropriate health coverage under the ACA. Here are some valuable tools and support systems that can help you through the process: 

  • State and Federal Marketplaces  

Start by visiting the ACA marketplace at HealthCare.gov or your state-specific marketplace. These platforms provide detailed information about plans, premiums, subsidies, and benefits within your area. 

  • Enrollment Assistance Programs  

Certified navigators and enrollment counselors are available to offer free, personalized support. They can help you understand plan details, complete applications, and maximize subsidies or Medicaid eligibility. Many nonprofit organizations and community health centers also provide this service. 

  • Specialized Advocacy Groups  

Organizations like the National Disability Rights Network (NDRN) and Autism Speaks provide resources and guidance for families with disabilities. These groups can help you identify plans that cover specialized therapies, equipment, and other critical services. 

  • Financial Assistance Calculators  

Tools like the subsidy estimator on the ACA website can help you determine your eligibility for premium tax credits and cost-sharing reductions. These calculators can give you a clearer picture of the affordability of different plans. 

  • Support for Transitioning Plans  

If you are switching coverage—whether due to relocation, changing income, or other circumstances—seek guidance on managing this transition. Ensure there is no gap in coverage, especially if you or a family member have ongoing medical needs.

The Importance of Preventive Care

One of the significant advantages of ACA-compliant plans is their inclusion of preventive care services without additional out-of-pocket costs. These services promote early detection and treatment of health conditions, which is particularly beneficial for families with disabilities. Examples of preventive care include: 

  • Routine Screenings  

Annual physicals, developmental screenings for children, and mental health assessments are often covered at no extra charge, enabling early intervention when issues arise. 

  • Vaccination Coverage  

ACA plans comprehensively cover vaccines, including those recommended for children and adults. Staying up to date on immunizations is vital for preventing potentially serious illnesses. 

  • Chronic Condition Management  

For individuals with disabilities or ongoing health needs, plans often include support for managing chronic conditions like diabetes, asthma, or hypertension. Access to monitoring tools, regular check-ups, and tailored treatment plans can improve health outcomes. 

. Challenges  

Selecting the right ACA plan can sometimes feel overwhelming, especially when faced with unique circumstances or complex medical requirements. Here are some common challenges families encounter and strategies to overcome them: 

  • Understanding Plan Terminology  

Terms like deductible, copayment, coinsurance, and out-of-pocket maximum can be confusing. Take the time to review the glossary provided on most ACA marketplace websites or ask an enrollment navigator to clarify these terms so you fully understand plan costs and benefits. 

  • Balancing Cost and Coverage  

It can be tempting to choose the plan with the lowest premiums, but these plans often come with higher deductibles or limited provider networks. Carefully evaluate how these trade-offs might impact your overall healthcare expenses, particularly for families with recurring medical needs. 

  • Navigating Provider Networks  

Ensuring your preferred doctors, specialists, and facilities are within the plan’s network is crucial. Use online directory tools provided by insurers to verify provider participation before enrolling. Remember to double-check pharmacy networks and medication coverage as well. 

  • Managing Out-of-Network Costs  

If you require care from specialists who are not in a plan’s network, out-of-network costs can be significant. Some plans offer partial reimbursements for out-of-network providers. Be sure to investigate these options if needed. 

  • Managing Unexpected Health Needs  

Life is unpredictable, and medical emergencies or new diagnoses can arise after selecting a plan. Consider plans with flexible coverage and lower out-of-pocket maximums to better manage unforeseen circumstances without major financial strain. 

Open enrollment is a critical time for families with disabilities to ensure they have the health coverage they need. The Affordable Care Act has been instrumental in expanding access to specialized therapies, medications, and services that support individuals with disabilities. By planning and exploring specialized options like ASD coverage and using the resources available, you can simplify the process and find the plan that best fits your family’s needs.

Blue Bird Day partnered with John Novi from Cosmat Insurance to host a virtual Beyond the Nest on Open Enrollment. Watch the recording above for insights and additional information on Open Enrollment.

Learn more about the Affordable Care Act in my post onThe Power of the Affordable Care Act: A Lifeline for Families with Disabilities.

Learn More About My Programs

Blue Bird Day is a rotational therapy program structured like a preschool or kindergarten, but instead of teachers all our staff are therapists! This program is designed to foster socialization, sensory regulation, and learning for children ages 2-7 and helps provide children the tools they need to succeed in a traditional classroom.

Eyas Landing is an outpatient therapy clinic that provides services for children ages 0-21. Our multidisciplinary team of therapists provide ABA, developmental, occupational, physical, speech, nutrition and feeding therapy along with early intervention, social work, counseling, and neuropsychological testing at our West Loop clinic, in-home, at school, and virtually.

Merlin Day Academy is a therapeutic day school for children ages 6-14. Our proprietary model utilizes daily therapeutic and educational rotations to support children’s growth, learning, and their transition into the least restrictive environment possible.

Share This Story, Choose Your Platform!